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Some of the instruments used evaluated QoL in general dermatologic conditions, and one was specific to EB. CONCLUSION QoL is more affected in people who have RDEB and JEB. Regarding sex and age, women and children need special care in their monitoring. It is necessary that guidelines on pain management be more disseminated and put into practice. Future studies should use standardized specific instruments to assess the QoL in EB individuals, while considering the particularities of the different age groups.PURPOSE This study aimed to exam
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