https://www.selleckchem.com/pr....oducts/amredobresib.
For parents, family, or clinicians of children with rare life-threatening conditions, there is little information regarding likely symptoms, illness trajectory, and end-of-life care. This descriptive analysis of a bereaved cohort recruited in the charting the territory study describes patient characteristics, symptoms, use of medications, discussion of resuscitation orders, and care provided preceding and during the end of life. Of the 275 children enrolled in the Charting the Territory study, 54 died between 2009 and 2014. Baselin
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